The first couple days of being diagnosed with multiple sclerosis (MS) were frightening, scary, sad, depressing and so overwhelming that I didn’t know what to do. My life completely changed at that moment. I didn’t have any idea what MS was or know anyone with it. During my initial diagnosis, I wish I had had someone to talk to about it other than my neurologist.
The first six years of my illness, I “ran away” and didn’t do anything about it because I was so scared of what was happening to me. That’s my biggest regret. Three years ago, my neurologist looked at me and said, “Brandon, we need to do something with your MS before it’s too late.” I knew I needed to accept my chronic illness and face it head-on. I reached out to MS support groups and my doctors to help me work on accepting my illness.
My advice for someone newly diagnosed would be talk to your doctor and see if disease modifying therapy is something that might work for you, as our goal is to stop and/or slow down the progression of this disease. Looking back, I wish I had been more proactive about addressing my MS. I am finally in a comfortable place to be able to talk to others about the disease. I am still working on accepting my limitations, but that may be something I battle with forever.
Best wishes,
Brandon
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