I remember a time when my job was making and teaching art. Teaching is my passion; before my MS diagnosis, I was working on making things look more realistic on paper. I loved the technical aspect of drawing from life and recreating the colors exactly. It was like a puzzle I was obsessed with solving. I did also dabble in abstract art, but, at the time, I didn’t have the highest regard for this type of art.
When I was diagnosed with MS, things became really heavy, really quickly. I suddenly could not see the colors on my paintings correctly. The dizziness and the fatigue quite literally stopped me in my tracks; it was so difficult to even make the “journey” to my studio outside the house. I remember looking at a blank canvas and immediately being able to relate to its nothingness. That empty, bright white blankness would stare right back at me. My head just spun with absolutely zero thoughts. Cog fog wore down my thinking capabilities like a pencil that was badly in need of sharpening.
Eventually I’d had enough. It was too much to just stare at all of my tools and feel completely useless, with all the wasted paper and materials just sitting in boxes. I would sit in my studio looking around for hours at a time.
One day I reached for the nearest, easy-to-grasp thing — watercolor pencils. I scribbled. I didn’t know what else to do. I felt frustration, and it needed to go away. The scribbling seemed to help. It was so good to feel the pencil graze against the paper. I added water and scribbled some more with the paintbrush. The colors seemed to melt together. The more I leaned into a more abstracted process of relieving control, the more comfortable I felt in my own shoes.
Eventually I came to understand that the difference between pre-MS and post-MS was my outlook about a project. The more I relinquished control, the easier it became to forget about all the issues I had. It was like meditation, in a way. I needed to let my hand do what it wanted and “go with the flow” in order to reach a state of relaxation. I had to tell myself that every amount of effort that I made was good for my well-being and good for my brain.
Somewhere, I had read that repetition and playfulness can be important factors in building up neural pathways. Art was relieving stress and maybe even helping my brain. This idea was so very comforting to me. So many self-help articles and books say to balance your life and do what you love. That’s what my life lacked in so many ways before my MS diagnosis. It’s still an ongoing process, but at least I have learned to look this disease straight in the eye and tell it not to bother me today. It doesn’t always listen, but we have come to a compromise.
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