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 Hannah's Relationship Advice

HANNAH'S RELATIONSHIP ADVICE

I have experience with mostly long-term relationships, and some dating experience. One relationship lasted for 10 years. My current relationship just passed one year. I will be explaining everything from the perspective of these experiences.

Q: What’s the hardest part about meeting someone?

A: The pandemic made it so very difficult to date. Oftentimes, I never got to meet the people I spoke with. Going with my gut instinct is what I do best, and that’s a difficult thing to navigate when you can’t do anything face to face. It made me realize just how unique and challenging these times are, and how important face-to-face interactions can be for connecting with people in general. The few people who did make it past the texting/online stage are people that I had either met in person pre-pandemic or had made a great impression on me while messaging on social media.

Q: What do you prefer to do the first time you’re meeting/going out with someone?

A: My favorite thing to do is eat! I love being adventurous, too. Because of the pandemic, all of my first dates involved walking somewhere outside — usually a cute touristy area where we would window shop. My current boyfriend and I went to local parks often. We got to explore some parks that I had never heard of — ones that were located right here in my own hometown.

Relationships are a two-way street. I need to feel like what I am doing with my life matters and is just as important as what my partner is doing. – a quote from HANNAH

Q: What’s your No. 1 rule about dating?

A: I always made sure that conversation was 50/50 at bare minimum. I needed to feel that I had the freedom and space to say anything that I wanted. As someone who historically has been very introverted, this is a huge change for me.

I need my partner to be that comforting light that I can rely on to make the day a little better. Relationships are a two-way street. I need to feel like what I am doing with my life matters and is just as important as what my partner is doing. To give an example, I once went on a date with someone who was nice and well-rounded. He also had MS, so it was interesting talking about symptoms. But you know what? I didn’t feel heard and didn’t get enough talking time in for myself, despite many attempts at finding just the right verbal “window” to open. I crossed him off the list about halfway through our one date. My gut instinct told me it wouldn’t work.

Q: At what point do you tell someone you have MS?

A: I tell people I have MS right from the get-go. It’s right there on my social media handles for the whole world to see. I have nothing to fear from losing out on someone who’s a “good catch,” because if they’re really all that good of a catch, they’d be interested in my story and would have questions to ask of me. My MS is like a shadow monster that follows me everywhere I go. It affects my day-to-day, and anyone who dates me deserves to know. Conversely, I deserve to know if they are inclined to accept me, my disease, and the bad days that may come with it.

Q: Can you give an example or two of how someone responded when you shared that you had MS?

A: I can give a few examples. One person was mildly interested in a short synopsis of what MS is. He didn’t ask many questions after that. Maybe he didn’t want to pry? Perhaps he didn’t like talking about anything negative. I basically told him I’m an open book; he could ask me anything.

 I tell people I have MS right from the get-go...I deserve to know if they are inclined to accept me, my disease, and the bad days that may come with it. – a quote from HANNAH

On the other hand, another person ended up opening up to me about his own struggles after I explained how MS affects me. I have found that these kinds of in-depth conversations tend to do that to people, so I wasn’t surprised. In the end, I stopped talking to him for other reasons.

My current boyfriend asked me every question imaginable about MS. How does it work in the brain? Is it contagious? What kinds of symptoms do you experience now? He asked me about what my day-to-day is like and how I navigate the world. I could tell these questions came from a place of concern and that he wondered what the future would look like. He had decided that every part of my personality was worth the possible struggles that would happen later in life due to MS.

My previous boyfriend of 10 years was around when I was diagnosed, and even went with me to my first appointment with the neurologist who broke the news. He was supportive in the moment when my symptoms were visible. But that seemed to be it. I remember feeling alone with my invisible symptoms and not feeling like we were a unit. At some point, I realized I needed someone who will be more open about their concern for me. I put me first.

Q: What’s a total deal-breaker in a boyfriend/date?

Q: What’s a total deal-breaker in a boyfriend/date?

A: Not accepting my pets as family members! How in the world can I be expected to date a non-animal-lover? Let’s take it a step further — how can I ever date anyone who doesn’t hold pets to the status of a family member? They’re my babies, and I love them so much. They help me deal with life and give me so much to look forward to in my day-to-day.

Q: Any advice for someone in a slump?

A: Please be patient. Do some soul-searching and really pinpoint what your standards are. Are there any specific questions that need to be answered in order for you to feel your best with your partner? You can be picky, and you can probably wait for the right person to come along. Be honest with them, too, because honesty will help you and your partner figure out if you’re right for each other. Find someone who will listen to absolutely everything, who will remember things that are important that you didn’t expect them to remember.

For example, my boyfriend knew that I was heat-intolerant from the beginning. I explained all the things that can happen if I become too overheated. It was a lot to take in. To my amazement, on our first hiking adventure he seemed to remember everything. He offered ways to help alleviate some symptoms, such as making sure I packed my ice towels, ice and plenty of water. We brainstormed some ideas to make our time together a little easier since we spent a lot of time at parks. The best part is when he can see dizziness and other symptoms when I’ve pushed myself too hard. I tend to get so excited about our hikes that I don’t take breaks as often as I need to. He can just see it in my eyes, and this is when he makes me take those breaks. I appreciate him so much for noticing the things I tend to hide from everyone else.


See more of Hannah's stories

Important Safety Information & Indications

What are OCREVUS and OCREVUS ZUNOVO?

OCREVUS and OCREVUS ZUNOVO are prescription medicines used to treat:

  • Relapsing forms of multiple sclerosis (MS), to include clinically isolated syndrome, relapsing-remitting disease, and active secondary progressive disease, in adults
  • Primary progressive MS, in adults.

It is not known if OCREVUS and OCREVUS ZUNOVO are safe and effective in children.

Who should not receive OCREVUS or OCREVUS ZUNOVO?

Do not receive OCREVUS or OCREVUS ZUNOVO if you:

  • have an active hepatitis B virus (HBV) infection.
  • have had a life-threatening administration reaction to ocrelizumab.
  • have had a life-threatening allergic reaction to ocrelizumab, hyaluronidase, or any of the ingredients of OCREVUS ZUNOVO. Tell your healthcare provider if you have had an allergic reaction to OCREVUS or OCREVUS ZUNOVO or any of their ingredients in the past.

What is the most important information I should know about OCREVUS and OCREVUS ZUNOVO?

OCREVUS and OCREVUS ZUNOVO can cause serious side effects, including:

  • Infusion reactions (OCREVUS): Infusion reactions are a common side effect of OCREVUS, which can be serious and may require you to be hospitalized. You will be monitored during your infusion and for at least 1 hour after each infusion of OCREVUS for signs and symptoms of an infusion reaction.
  • Injection reactions (OCREVUS ZUNOVO): Injection reactions are a common side effect of OCREVUS ZUNOVO, which can be serious and may require you to be hospitalized. You will be monitored for signs and symptoms of an injection reaction when you receive OCREVUS ZUNOVO. This will happen during all injections for at least 1 hour after your first injection, and for at least 15 minutes after all injections following the first injection.

Tell your healthcare provider or nurse if you get any of these symptoms:

  • itchy skin
  • trouble breathing
  • nausea
  • shortness of breath
  • rash
  • throat irritation or pain
  • headache
  • fatigue
  • hives
  • feeling faint
  • swelling of the throat
  • fast heartbeat
  • tiredness
  • fever
  • dizziness
  • coughing or wheezing
  • redness on your face (flushing)

Additionally, for OCREVUS ZUNOVO:

  • injection site pain
  • swelling
  • redness

These infusion and injection reactions can happen during or up to 24 hours after administration. It is important that you call your healthcare provider right away if you get any of the signs or symptoms listed above after each infusion or injection.

  • Infection:
    • Infections are a common side effect. OCREVUS and OCREVUS ZUNOVO increase your risk of getting upper respiratory tract infections, lower respiratory tract infections, skin infections, and herpes infections. Serious infections can happen with OCREVUS and OCREVUS ZUNOVO, which can be life-threatening or cause death. Tell your healthcare provider if you have an infection or have any of the following signs of infection including fever, chills, or a cough that does not go away, or painful urination. Signs of herpes infection include: cold sores, shingles, genital sores, skin rash, pain, and itching. Signs of more serious herpes infection include: changes in vision, eye redness or eye pain, severe or persistent headache, stiff neck, and confusion. Signs of infection can happen during treatment or after you have received your last dose of OCREVUS or OCREVUS ZUNOVO. Tell your healthcare provider right away if you have an infection. Your healthcare provider should delay your treatment with OCREVUS or OCREVUS ZUNOVO until your infection is gone.
      • Hepatitis B virus (HBV) reactivation: Before starting treatment with ocrelizumab, your healthcare provider will do blood tests to check for hepatitis B viral infection. If you have ever had hepatitis B virus infection, the hepatitis B virus may become active again during or after treatment with OCREVUS or OCREVUS ZUNOVO. Hepatitis B virus becoming active again (called reactivation) may cause serious liver problems including liver failure or death. Your healthcare provider will monitor you if you are at risk for hepatitis B virus reactivation during treatment and after you stop receiving OCREVUS or OCREVUS ZUNOVO.
      • Weakened immune system: OCREVUS or OCREVUS ZUNOVO taken before or after other medicines that weaken the immune system could increase your risk of getting infections.
  • Progressive Multifocal Leukoencephalopathy (PML): PML is a rare brain infection that usually leads to death or severe disability and has been reported with ocrelizumab. Symptoms of PML get worse over days to weeks. It is important that you call your healthcare provider right away if you have any new or worsening neurologic signs or symptoms that have lasted several days, including problems with:
    • thinking
    • eyesight
    • strength
    • balance
    • weakness on 1 side of your body
    • using your arms or legs
  • Decreased immunoglobulins: OCREVUS and OCREVUS ZUNOVO may cause a decrease in some types of immunoglobulins. Your healthcare provider will do blood tests to check your blood immunoglobulin levels.

Before receiving OCREVUS or OCREVUS ZUNOVO, tell your healthcare provider about all of your medical conditions, including if you:

  • have or think you have an infection. See “What is the most important information I should know about OCREVUS and OCREVUS ZUNOVO?”
  • have ever taken, take, or plan to take medicines that affect your immune system, or other treatments for MS. These medicines could increase your risk of getting an infection.
  • have ever had hepatitis B or are a carrier of the hepatitis B virus.
  • have a history of inflammatory bowel disease or colitis.
  • have had a recent vaccination or are scheduled to receive any vaccinations.
    • You should receive any required ‘live’ or ‘live-attenuated’ vaccines at least 4 weeks before you start treatment with OCREVUS or OCREVUS ZUNOVO. You should not receive ‘live’ or ‘live-attenuated’ vaccines while you are being treated with OCREVUS or OCREVUS ZUNOVO and until your healthcare provider tells you that your immune system is no longer weakened.
    • When possible, you should receive any ‘non-live’ vaccines at least 2 weeks before you start treatment with OCREVUS or OCREVUS ZUNOVO. If you would like to receive any non-live (inactivated) vaccines, including the seasonal flu vaccine, while you are being treated with OCREVUS or OCREVUS ZUNOVO, talk to your healthcare provider.
    • If you have a baby and you received OCREVUS or OCREVUS ZUNOVO during your pregnancy, it is important to tell your baby’s healthcare provider about receiving OCREVUS or OCREVUS ZUNOVO so they can decide when your baby should be vaccinated.
  • are pregnant, think that you might be pregnant, or plan to become pregnant. It is not known if OCREVUS and OCREVUS ZUNOVO will harm your unborn baby. You should use birth control (contraception) during treatment with OCREVUS and OCREVUS ZUNOVO and for 6 months after your last dose of OCREVUS or OCREVUS ZUNOVO. Talk with your healthcare provider about what birth control method is right for you during this time. Tell your healthcare provider if you become pregnant while receiving OCREVUS or OCREVUS ZUNOVO.
  • are breastfeeding or plan to breastfeed. It is not known if OCREVUS and OCREVUS ZUNOVO pass into your breast milk. Talk to your healthcare provider about the best way to feed your baby if you take OCREVUS or OCREVUS ZUNOVO.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

What are the possible side effects of OCREVUS and OCREVUS ZUNOVO?

OCREVUS and OCREVUS ZUNOVO may cause serious side effects, including:

  • Risk of cancers (malignancies) including breast cancer: Follow your healthcare provider’s instructions about standard screening guidelines for breast cancer.
  • Inflammation of the colon, or colitis: Tell your healthcare provider if you have any symptoms of colitis, such as:
    • Diarrhea (loose stools) or more frequent bowel movements than usual
    • Stools that are black, tarry, sticky or have blood or mucus
    • Severe stomach-area (abdomen) pain or tenderness

The most common side effects of OCREVUS ZUNOVO include:

  • Injection reactions
  • Respiratory tract infections
  • Skin infections

These are not all the possible side effects of OCREVUS and OCREVUS ZUNOVO.

For more information, go to www.OCREVUS.com or call 1-844-627-3887.

Please see additional Important Safety Information throughout and click here for full Prescribing Information and Medication Guide for OCREVUS.

Please see additional Important Safety Information throughout and click here for full Prescribing Information and Medication Guide for OCREVUS ZUNOVO.

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    • Sohn H. Racial and Ethnic Disparities in Health Insurance Coverage: Dynamics of Gaining and Losing Coverage over the Life-Course. Popul Res Policy Rev. 2017;36(2):181​-201.

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